What do you do when your child has a terminal illness? You decide you
are going to fight it... With all your soul!
When our daughter was diagnosed with Cystic Fibrosis in 1997, we knew very
little about the disease, but we knew that someday, if a cure was not found,
we would be left to watch our daughter struggle to stay alive. At the time
Bella was diagnosed, the average life expectancy for a "CF" patient was 27,
not much older than we were as struggling parents. It is nearly
impossible to explain the feeling of hoplessness and lack of direction one
But, we decided that this would not be our daughter's fate. Cystic
Fibrosis would not be stronger than our resolve. We took it to task to
learn as much about this disease as we could and be proactive in following
current research to help as best as we could. Along the way, we
discovered the Cystic Fibrosis Foundation (CFF) and all the "great
strides" they were making to eliminate CF. We immediately
determind that we could do the most beneficial work by helping with local
fundraising efforts to assist the CFF in funding critical life extending
Through critical advances in research, resulting from fundraising dollars,
the life expectancy of Cystic Fibrosis patients has now surpassed 35 years!
Although this is a rewarding fact, there are still far too many patients
that lose their battle in their childhood years. So we continue to support
the Cystic Fibrosis Foundation because we are confident that, together, we
can elimiate CF in our lifetime.
In 2001, we organized the group, "Isabella's
Cause," in order to put a name and face on our fund raising
efforts. Our main fundraising efforts center around the regional
"Great Strides Walk for a Cure," in
May, with additional events periodically throughout the remainder of the
year. If you would like to help, please visit the
"How you can help" section of our site.
Thank you for taking the time to learn about Isabella's Cause, and thank you
for your helpful considerations.
About the CFF...
Since 1955, the Cystic
Fibrosis Foundation has been the driving force behind the pursuit
of a cure. Thanks to the dedication and financial backing of our
supporters — patients, families and friends, clinicians, researchers,
volunteers, individual donors, corporations and staff, we are making a
The Cystic Fibrosis Foundation is the world’s leader in the search for a
cure for cystic fibrosis. They fund more CF research than any other
organization, and nearly every CF drug available today was made possible
because of Foundation support.
They are a nonprofit donor-supported
organization dedicated to attacking cystic fibrosis from every angle. Their
focus is to support the development of new drugs to fight the disease,
improve the quality of life for those with CF, and ultimately to find a
The Foundation's drug development model has been recognized by Harvard
Business School and by publications such as Forbes, The
New Yorker, and Bloomberg
The Foundation funds and accredits a national
care center network that has been recognized by the National Institutes of
Health as a model of care for a chronic disease.
The Cystic Fibrosis
Foundation is one of the most efficient organizations of its kind and is an
accredited charity of the
Business Bureau's Wise Giving Alliance.
The Cystic Fibrosis Foundation Is…Building on Success
- When the Foundation was established in 1955, children with CF rarely
lived long enough to attend elementary school. Due in large part to the
Foundation's aggressive investments in innovative research and
comprehensive care, many people with the disease can now expect to live
into their 30s, 40s and beyond.
- In 1989, CF Foundation-supported scientists discovered the defective
gene that causes cystic fibrosis — a monumental breakthrough on the road
to a cure.
- The Foundation played an integral role in the development and FDA
approval of four therapies that are now a routine part of treatment
regimens for many with CF. The Foundation is actively supporting nearly
potential new treatments currently in development — that's more than
in the entire history of the disease. One groundbreaking potential drug
that treats the underlying cause of CF will be submitted for FDA review
in late 2011.